Community Resonance Foundation is committed to operating with transparency, ethical responsibility, and respect for the communities we serve. The policies below guide our work and ensure accountability to partners, contributors, and stakeholders.
Last updated: March 2026
Editorial Integrity & Community Representation
Community Resonance Foundation maintains editorial independence while ensuring that community voices are represented accurately and respectfully.
Patient advocacy organizations review relevant content prior to publication to confirm accuracy and alignment with community perspectives. Communities retain authority over how their experiences and priorities are represented, while the foundation maintains responsibility for editorial standards, methodological integrity, and production quality.
This balance ensures that lived experience is communicated responsibly without compromising accuracy or ethical practice.
Participant Consent & Ethical Engagement
Individuals who contribute interviews, stories, or insights are informed in advance about how their contributions may be used. Participants may review how their experiences are represented and may withdraw participation prior to publication if concerns arise.
When appropriate, Community Resonance Foundation provides honoraria to recognize the time and expertise of participants.
All engagement is conducted in accordance with ethical practices consistent with community-centered qualitative research.
Conflict of Interest & Funding Transparency
Community Resonance Foundation discloses funding sources and manages potential conflicts of interest in accordance with nonprofit governance standards.
Funding is accepted only when it aligns with the organization’s mission and preserves editorial independence. Financial supporters do not influence narrative content, analytic interpretation, or editorial decisions.
Maintaining trust with communities and partners requires clear separation between funding and editorial judgment.
Community Resonance Foundation’s full Financial Conflict of Interest (FCOI) Policy may be made available by request submitted through the Contact form.
Privacy Policy & Data Stewardship
Community Resonance Foundation takes appropriate measures to protect participant privacy and safeguard sensitive information and respects the privacy of individuals who visit our website and engage with our programs. This section explains how information may be collected and used.
Personal health information is not collected or stored unless explicitly required for a defined engagement and supported by appropriate consent procedures. Narrative materials, recordings, and related documents are stored securely and used only for the purposes described to participants and partner organizations.
Information We May Collect
When visitors interact with our website, we may collect limited personal information that is voluntarily provided, such as:
- Name
- Email address
- Organizational affiliation
- Information submitted through contact forms or partnership inquiries
We collect only the information necessary to respond to inquiries or support collaboration.
How Information Is Used
Information provided through the website may be used to:
- Respond to inquiries or requests
- Communicate about partnerships or collaboration opportunities
- Provide updates about Community Resonance Foundation activities
Personal information is not sold, rented, or used for commercial marketing purposes.
Data Protection
Community Resonance Foundation takes reasonable measures to protect personal information from unauthorized access or misuse. Access to submitted information is limited to individuals responsible for responding to inquiries or managing organizational communications.
Sharing of Information
Personal information submitted through this website will not be shared with third parties except when required by law or when necessary to respond to a specific request initiated by the individual.
External Links
Our website may contain links to external organizations or resources. Community Resonance Foundation is not responsible for the privacy practices of external websites.
Updates to This Policy
This policy may be updated periodically to reflect changes in organizational practices or legal requirements. Updates will be posted on this page with the revised date.
Community Safeguards
Community Resonance Foundation is committed to respectful and responsible engagement with individuals and communities sharing lived experience.
The organization avoids sensationalism, misrepresentation, or exploitation of vulnerable populations. Participants and partner organizations may raise concerns regarding representation or use of materials, and such concerns will be reviewed promptly and addressed in good faith.
Accessibility & Inclusive Engagement
Community Resonance Foundation is committed to making its work accessible to diverse audiences and communities. Whenever possible, materials are developed in formats that support accessibility, including written transcripts for audio content and clear language appropriate for varied audiences.
The organization actively seeks to include perspectives from communities that are often underrepresented within healthcare conversations.
Ethical Use of Community Knowledge
Community Resonance Foundation recognizes that lived experience shared by patients, caregivers, and community advocates represents valuable knowledge.
Community contributions are treated with respect and care. Narratives and insights are used only for the purposes described to participants and partner organizations. The organization does not sell or exploit community narratives and works to ensure that outputs primarily benefit the communities and advocacy organizations who contribute their perspectives.
Governance & Accountability
Community Resonance Foundation is governed by an independent Board of Directors responsible for fiduciary oversight, mission stewardship, and ethical accountability.
Organizational policies are reviewed periodically to ensure they remain appropriate as the organization grows and engages with new communities and partners.
Terms of Website Use
All materials on this website, including text, audio, images, and other content, are provided for informational and educational purposes.
Unless otherwise noted, content may not be reproduced, distributed, or modified without prior permission from Community Resonance Foundation. Patient advocacy organizations and community partners who participate in our work may reference or share content in ways consistent with collaborative agreements.
Accuracy of Information
Community Resonance Foundation makes reasonable efforts to ensure that information presented on this website is accurate and current. However, the organization does not guarantee the completeness or accuracy of all information and reserves the right to update or modify content at any time.
Information provided on this website should not be interpreted as medical, legal, or professional advice.
External Links
This website may contain links to external websites or resources. These links are provided for convenience and informational purposes only. Community Resonance Foundation is not responsible for the content, policies, or practices of external websites.
Appropriate Use
Visitors agree to use this website in a manner that is lawful and respectful. Activities that interfere with the operation of the website or attempt to access restricted systems or information are prohibited.
Changes to These Terms
Community Resonance Foundation may update these Terms of Use from time to time. Updates will be posted on this page with the revised date.
Additional Governance Documents
Additional governance documents, such as conflict of interest, editorial standards, participant consent, and organizational governance, may be made available upon request.
For questions regarding these policies, please contact us.