Our Mission
We work to improve community health and quality of life by enabling lived experience to inform decisions across healthcare.
Our Role
Patient advocacy organizations (PAOs) hold deep knowledge about the realities of illness and play a vital role in building awareness of conditions that are often misunderstood, overlooked, or underrepresented. Community Resonance Foundation works alongside PAOs to translate that knowledge into public-facing communications and audience-specific materials that make affected communities more visible and better understood by healthcare stakeholders.
Leadership
Community Resonance Foundation is guided by leaders with experience in patient advocacy, healthcare research, community engagement, and the communication of complex health issues across audiences.
Holly Jones
Holly Jones is the founder of HERstory In Color, a community organization supporting women of color living with multiple chronic illnesses. Diagnosed with polymyositis at nineteen, she spent years navigating the healthcare system without culturally relevant support. That experience shaped her advocacy. She launched the Myositis Women of Color community in 2020, which later became an affinity group within The Myositis Association. In 2021 she founded HERstory In Color to address the broader absence of community for women of color facing complex and often invisible health conditions. At Community Resonance Foundation, Holly brings community rooted advocacy experience and the perspective of building support networks in response to gaps in care and representation. Her leadership helps ensure the foundation remains accountable to the communities it serves.
Richard Juknavorian
Richard Juknavorian is a university innovation leader, digital health strategist, and champion for health equity and women’s leadership. As host of Rare Awareness Radio, he amplifies the stories of patients, researchers, and advocates navigating the rare disease landscape. He also created Meeting You Where You’re At, a Top-30 social impact podcast featuring bold, trailblazing women entrepreneurs. Across both platforms, Richard uses storytelling as a vehicle for empowerment, visibility, and real-world impact. As a co-founder of Community Resonance Foundation, Richard shapes storytelling and community engagement across its programs.
Scott Milligan, PhD
Scott Milligan brings more than two decades of experience in healthcare research, with deep expertise in observational and real-world evidence methods and stakeholder engagement. His work has spanned pharmaceutical companies, payers, and physician networks, with a consistent focus on how real-world and community experience can inform healthcare decision-making. At Community Resonance Foundation, Scott leads methodological development and the organization’s approach to translating lived experience into actionable, stakeholder-accessible insight.
Our Principles
- Community Ownership — Communities retain authority over how their experiences and perspectives are represented.
- Ethical Representation — Lived experience is documented and communicated accurately, respectfully, and without exploitation.
- Methodological Integrity — Qualitative methods and narrative synthesis are applied with appropriate rigor and transparency.
- Accessibility & Inclusion — Community perspectives are communicated in ways that are accessible across audiences.